MennoSota
Well-known member
- Joined
- Sep 24, 2017
- Messages
- 7,102
- Age
- 54
- Gender
- Male
- Religious Affiliation
- Christian
- Political Affiliation
- Moderate
- Marital Status
- Married
President Trump signed the "Right to Try" bill into law.
Having watched my two nephews and niece all die because of Spinal Muscular Atrophy, I welcome this law. There were some drugs that could have helped (Spinraza was in testing) had my brother and his wife been able to try them. Instead, I hope that other families get the chance to do whatever they can to try heal a loved one.
https://www.cnbc.com/2018/05/30/trump-signs-right-to-try-legislation-on-experimental-medicines.html
Having watched my two nephews and niece all die because of Spinal Muscular Atrophy, I welcome this law. There were some drugs that could have helped (Spinraza was in testing) had my brother and his wife been able to try them. Instead, I hope that other families get the chance to do whatever they can to try heal a loved one.
https://www.cnbc.com/2018/05/30/trump-signs-right-to-try-legislation-on-experimental-medicines.html